Worries

Matilda is beautiful, lively and has a wonderful personality. She is not yet 18 months old and yet she has already acquired the ability to manipulate those around her.  If she is somewhere that she doesn't want to be, then she takes my finger and gently pulls me to where she does want to be. She gets what she wants by pointing and making appropriate noises and to all intents and purposes she is a perfect child, whatever that means.  However, things are not all they seem to be.  Matilda had one of her regular trips to St Thomas' hospital yesterday and the issue with her aorta has worsened.  Basically it seems that the walls are thickening and she needs intervention.  The next step is the introduction of a device to open the artery and so this poor little mite will have to undergo the procedure in the next few months.  I find it quite upsetting so goodness knows what her parents must be feeling.
On the positive side, the problem was spotted early by a very aware paediatrician, and so she is getting the best care in a centre that specialises in such problems, and of course she is totally unaware of her problem.
For now though it feels that we are living with a potential time bomb and it doesn't feel very nice.